A couple of weeks back I received an email asking if I would consider producing a publicity photograph for an upcoming event where are group of guys were going to be running ‘non stop’ from Dover to Farnham; a distance of 127 miles.
Ok so my initial reaction was ‘why would they do that?’ but as I kept on reading I uncovered that the sole purpose was to raise money for a little boy of 3 years called Alfie. You see back in June of this year Alfie was diagnosed with having Duchenne Muscular Dystrophy; a severe muscle wasting condition affecting around 100 boys each year.
Needless to say there was no doubt that this was something I simply HAD to do and the photograph you see below is the result that will be appearing in local press, mail shots and wherever else it can be put in front of people’s eyes to help with awareness and fund raising:
I’ve since spoken at length with Alfie’s father Tony and can only begin to imagine how he, his wife Jenny and family must feel. That being said the strength both of them show in public when talking in detail about Alfie and his condition is nothing short of incredible.
To give you more of an understanding of what’s going on and why, here’s the content of the email that I was sent through when initially approached about the publicity photograph:
Alfie Marchant was born on the 21st June 2007 to proud parents Tony and Jenny. Following his 3rd Birthday it was noticed that his speech and aspects of his coordination were less developed than other children in his nursery class.
Although their fears were initially dismissed by medical professionals, after a series of medical tests Alfie was eventually referred to specialists at the Great Ormond Street Hospital for Sick Children, in London.
In June 2010 Alfie was diagnosed with Duchenne Muscular Dystrophy, a severe muscle wasting condition affecting around 100 boys each year.
Alfie’s muscles will become progressively weaker and his health will deteriorate. He will be wheelchair bound within the next few years. There is currently no cure and he is not expected to live beyond his early 20’s.
The family now also have the torment of waiting several months to see if their younger son Arthur, born in February 2010 also has the condition.
North Downs Challenge: In aid of Muscular Dystrophy research and the Marchant Family Trust
On Thursday 23rd September 2010 a team of runners from Heathrow Police Station are attempting to beat the current record for traversing the North Downs Way; 127 miles in 44 hours over rough terrain, equivalent to almost 5 marathons in 2 days, non stop in aid of Muscular Dystrophy research and the Marchant Family Trust.
The challenge is being spearheaded by a small team of Police Officers, ultra runners who are veterans of 250k races including the Jungle Marathon Brazil, Coastal Challenge Costa Rica and the Trans Alpine. They will be supported along the length of the route by colleagues and friends running set stages, making this both a unique record attempt and true family event.
The route runs between Dover and Farnham and to support this and other events you can go to: www.marchantfamilytrust.org.uk
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On the day of the ‘shoot’ weather conditions were far from perfect; in fact I think it was the only day of rain we’d had in the middle of 4 superb weeks of sunshine but my thanks to everyone that helped out in the limited time we had; fingers firmly crossed now that it has the desired affect.